Sickle Cell Society

APPGs operated

1

lobby groups inside Westminster

MP officers

4

across all groups run

Registered funders

1

paying entries on the APPG register

A secretariat is the entity that does the operational work of an All-Party Parliamentary Group: drafts agendas, briefs MPs, sends out invitations, books rooms, writes reports. When the secretariat is a lobby firm or PR firm, the APPG is a paid channel for the firm’s clients to access MPs. The MPs officer the group, the firm supplies the staff and the policy line, the firm’s clients (listed under Funders below) pay for the privilege.

APPGs operated · 1

All-Party Parliamentary Group on Sickle Cell and ThalassaemiaSubject Group
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.
Officered by: Janet Daby (Chair & Registered Contact), Ben Coleman (Officer), Lord Kamall (Officer), Baroness Thornton (Officer)
Paid by: Sickle Cell Society (£25,501-27,000)
Group website ↗